Choosing to write
For people with disabilities who came before me and who follow
“I choose to write about my life because my ancestors could not.” (– Neesha Powell-Ingabire, Poets & Writers Magazine (Sept/Oct 2024)
I have written personal essays and stories about my life for a long time. Reflecting on these life experiences has given me a chance to highlight important historical moments impacting my independence. These events provided the access and support I and so many others needed to experience full and active lives.
“Don't take anything for granted”.
This phrase has come to mind often during these last few weeks. As we are stormed with news, budget cuts, and possible changes in social programs, my stories are rising to the surface again. More than ever, I feel the importance of sharing these stories not only for those who came before me but for this generation and beyond.
I have lived through many iterations of being disabled. When young, I grew up in a very supportive family and community. I went to "special schools" for children with disabilities until I was in ninth grade. I knew I was different but didn't pay much attention to the stares. There wasn't a lot of access to buildings or churches when I was young but my parents made sure that I was able to get to places for fun and community.
Growing up, I was part of the first generation to benefit from new laws, including Vocational Rehabilitation and the signing of the ADA. Both of these historical events opened doors to schools, public buildings and transportation. The workplace became more accessible. Through all of this, I was encouraged to become an active member of my community and seek a profession where I could use my skills for the greater good. And so I found myself an ordained Episcopal priest.
A lot of work has been done to raise awareness of the history of people with disabilities in this country. I recently watched this video by Lawrence Carter-Long introducing the Ed Roberts campus in Berkeley, California.
I share it along with encouragement that we have come a long way. There is work to be done. Let our voices be heard!